Brief summary: im from a family with cowden syndrome, its runs in my fathers genes its past from my father to my brother and 3 sisters out of my dads children im the only child who does not have cowden syndrome, I find it very difficult talking about this condition.
Brief summary: I am the mum of 2 children with Cowden syndrome a PTEN genetic disorder. My son has had Thyroid cancer and has autism. My daughter has vascular malformations and has recently had a prophelactic thyroidectomy,
Yorkshire and the Humber
Family type: Siblings:
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