Alpha Thalassaemia
also listed as ATR-16,ATR-X,Mental Retardation on the X Chromosome
4 people found, showing 1 to 4
East Sussex
( South East
)
Affected Person:
Jan 2004
Family type:
Siblings:
2
Disabled siblings:
0
Username: nickysmum Relationship:
Mother
Other conditions:
None
Last updated: 12 Jul 2008
Brief summary: my son was diagnosed with atrx syndrome in july 2005. would love to hear from anybody experiencing the same emotional roller coaster.
Gloucestershire
( South West
)
Affected Person:
Jul 1996
Family type:
Siblings:
3
Disabled siblings:
0
Username: charlie Relationship:
Mother
Last updated: 14 Aug 2004
Brief summary: I am a mother of a child with a disabilty and would like to contact anyone with the same problems as I have.
Hampshire
( South East
)
Affected Person:
Jun 2000
Family type:
Siblings:
5
Disabled siblings:
1
Username: brightandnew Relationship:
Mother
Last updated: 11 Mar 2007
Brief summary: I have a lovely little boy who has ATR-X Syndrome.
Happy for anyone to contact me :)
United States of America
( Americas
)
Affected Person:
Mar 1998
Family type:
Siblings:
0
Disabled siblings:
0
Username: squirt1271 Relationship:
Mother
Other conditions:
None
Last updated: 01 Jul 2010
Brief summary: My son was diagnosed with Cerebral Palsy for 10 years, then his neurologist suggested he may have ATRX and it was confirmed by a genetic specialist at the age of 10.
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